MS DataConnect

The MSDataConnect consortium (UHasselt) connects partners involved in Multiple Sclerosis (MS) care, rehabilitation, and research, with partners involved in IT development, database management, data sharing procedures, statistics, machine learning and prediction modelling.

MS DataConnect focuses on developing (1) data collection procedures and tools to create data that is FAIR, (2) IT solutions to allow (temporarily) pooling and linking of FAIR data sets, (3) statistical methods to define minimal requirements for data sets, and (4) new analytical methods for optimal mining of connected and pooled FAIR data sets.

The MS DataConnect consortium is the project coordinator of the international project Multiple Sclerosis Data Alliance (MSDA), which brings together registry holders, patients, medical societies, academia, industry, the European Medicine Agency (EMA), and Health Technology Assessment (HTA) bodies. One of the first goals of the MSDA is the development of the MSDA cohort explorer. This tool will enable searching aggregated data across different MS registries and cohorts after data is mapped to a harmonized data template. The subject and variable selection tools in the MSDA cohort explorer will allow end-users to identify MS data cohorts suitable for their (research-)question, and will facilitate the initiation of (new) collaborations with these MS cohorts.